HDYO’s International Young Adults Virtual Congress
March 5-6, 2022

Saturday, March 5

   4:30pm – 9pm GMT

Sunday, March 6

 4:30pm – 9pm GMT

Additional Sunday Session for Asia/Australasia Time Zones

 6am – 8am GMT, 11:30am Delhi, 5pm Sydney, 7pm Auckland

Main Event Time Zones

08:30am - 01:00pm PST

11:30am - 04:00pm EST

05:30pm - 10:00pm CET

10:00pm - 02:00am New Dehli

12:30am - 05:00am Perth

03:30am - 08:00am Sydney

05:30am - 10:00am Auckland

Welcome to HDYO’s International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we’re hosting another virtual congress! Join us for two days of sensational speakers, personal stories, shared experiences and educational sessions and research updates from leading pharmaceutical companies and professionals. This event is open to all HD community members: family and professional. For families, there is no cost for attending. For professionals, will be asked to pay a small fee when registering.

Event Details

The event will be 4 hours long on each day with a special 2-hour session in-between to better accommodate for the Asia/Australasia time zones, but all are welcome to attend. Registering for the entire event will cover you for all days and sessions. More details on the agenda will be provided soon.

HDYO (The Huntington's Disease Youth Organization) is an international non-profit supporting, educating, and empowering young people up to 35 years, impacted by Huntington's Disease around the world. Learn more

Have questions? Visit our FAQs or email Matt Ellison

Sponsors and Exhibitors

This event offers unique sponsorships and exhibitors booths to connect with young people and families in the HD community to provide support and resources. Interested? Contact Jenna Heilman.

Why Attend?

  • Join us for two days of packed content all from your home!
  • Learn more about Huntington’s Disease & its impact on young people and their families
  • High quality and informative presentations and sessions
  • Connect with young people, HD family members and professionals worldwide

Agenda

 4:30 p.m
 5 p.m

Track 1

Trey Gray

Track 2

Dr. Jane Paulsen

 5:30 p.m

Track 1

Karam El-Din, Yousef El-Din

Track 2

Katrina Paumier

 6:00 p.m

Track 1

Track 2

 6:15 p.m

Track 1

Joe Liberman

Track 2

Corey Janke, Moderator

 6:45 p.m

Track 1

Dr. Bonnie Hennig-Trestman

 7:15 p.m

Track 1

Track 2

 7:30 p.m

Track 2

Olga Klepitskaya

 8 p.m

Track 1

Dr. Rebecca Mason and Dr. Lauren Byrne

Track 2

Ashley Clarke, Emma Harris, Emma Terrranova Davis

 8:30 p.m

Track 1

Dr. Martha Nance

Track 2

Ashley Clarke, Emma Harris, Emma Terrranova Davis

 4:30 p.m

Track 1

Track 2

Peter McColgan, Dr. Lauren Byrne, Seth Rotberg

 5:00 p.m
 5:30 p.m
 6 p.m

Track 1

Track 2

 6:15 p.m

Track 1

Mackenzie Remillard and Sadie Van Beest

HD Advocates

Track 2

Leora Fox, Dr. Lauren Byrne and Arik Johnson

 6:45 p.m

Track 1

Tess Persson and Erin Paterson

HD Advocates

Track 2

Leora Fox, Dr. Lauren Byrne and Arik Johnson

 7:15 p.m

Track 1

Track 2

 7:30 p.m
 8 p.m

Track 1

Professor Sarah Tabrizi

 8:30 p.m

Track 1

Track 2

Charles Sabine

 6 a.m

Track 1

Zhao Xinrun

 6:30 a.m

Track 1

Megha Bhaduri

 7 a.m

Track 1

Dr. Kelly Atkins

Meet the Speakers

Angela Abell

HDYO Ambassador

Impacted by HD

Read Bio
TBA

Anne Elizabeth Saldarriaga

Bachelor of Philosophy

Impacted by HD

Read Bio
I'm a proud nerd obsessed with solving challenging problems via technology

Arik Johnson

Chief Mission Officer

HDSA

Read Bio
Goal-oriented, Proactive Product Manager with years of experience in Telecommunication, IT and Digital Financial industry

Ashley Clarke

HDYO Board Member

Impacted by HD

Read Bio
Goal-oriented, Proactive Product Manager with years of experience in Telecommunication, IT and Digital Financial industry

Astri Arnesen

President & CEO

EHA

Read Bio
Fatima is a product manager at Bazaar Technologies, Pakistan's rising tech unicorn, where she looks after the customer and business domain - this means everything from partner relations to retention and customer wallet share to acquisition! Fatima is a strong advocate of employing a user-centered approach by designing and building for the customers through conversation, observation and co-creation.

Dr. Bonnie Hennig-Trestman

Clinical Therapist

HDYO Board, Research Co-Chair

Read Bio
Hira Nazir is the Head of Product at CarFirst, Pakistan’s most trusted used-car trading platform, which has raised significant investment rounds from some of the world’s most prestigious investors from around the world.

In her current role, Hira is responsible for overseeing all aspects of the design, development and delivery of products and services. Hira also oversees the team that ensures the reliability of our backend and drives innovation and automation across our operations.

Over the past seven years, Hira has applied her technical expertise and know-how to a number of Tech & Internet-focused start-ups. Her professional experience includes positions in product strategy, business development, and marketing for a number of established brands such as CarFirst and Duriana. Hira holds a bachelor’s degree in International Business from the Limkokwing University of Technology in Kuala Lumpur, Malaysia, and has extensive international experience, having lived in four different metropolitan cities.

Her hobbies include discovering great food & coffee spots and traveling the globe. Hira is also an avid reader who loves to discover good books.

Bruce Wilson

HDYO Ambassador

Impacted by HD

Read Bio
Khusnuma is a product development expert, tech enthusiast, customer experience advocate and a banker

Charles Sabine

Journalist

Impacted by HD

Read Bio
Mahad is a CS graduate who is pursuing a career in Product Management. His passion for solving problems through technology has been helping him build & test multiple digital products in the last 4 years. Currently he's working at RepairDesk as a Product Manager. He is leading a transformational project in which RepairDesk is rewriting the whole software to make it more seamless, intuitive & user friendly. He not only has successfully built & shipped products from scratch but has experience in marketing & selling them as well. He has co-founded a product company "remoty" which envisions to make remote working more productive & efficient.
speaker

Chelley Casey

Wave Life Sciences

speaker

Corey Janke

Huntington Society of Canada

speaker

Emma Harris

HD Advocate

Erin Paterson

Founder of Lemonade Press

Impacted by HD

Read Bio
Muhammad Hassan Ahmed currently working as a Product Manager at Airlift Technologies. One key thing that I have learned over my brief experience as a product manager is how not to wait for the perfect product and simply launch the not so perfect product that solves the pain-point of the users. I am extremely delighted to be a part of this conference and I look forward to share my learnings as well as learn from other aspiring product managers attending the conference.

Dr. Michael Hayden

CEO, Prilenia Therapeutics

Read Bio

Jimmy Pollard

Huntington’s Disguise

Read Bio
I am the founder of AltAnalytica. AltAnalytica helps early stage tech startup find product market fit and grow exponentially.

I was also a part of the founding team of CreditBook. CreditBook has raised $1.5 million to revolutionise how MSMEs manage their business.

Some of the other companies that I have worked with include Swvl, FindMyAdventure, EZOfficeInventory, Unilever, VentureDive, UTM.io, etc.
speaker

Joe Liberman

uniQure

Karam Gaml El Din

Media Production

Impacted by HD

Read Bio
I am a Product Manager at AimFit with primary responsibilities related to the admin portal, app content, user feedback and design. New to the Product Management world. I graduated from Lahore School of Economics in 2016 with a Masters in Business Administration. With a major in Marketing, I started my career with a role in sales and marketing. I joined AimFit in 2019 and as soon as the company started its digital operations, my role switched to product management. The transition has been really exciting and instructive!
speaker

Katrina Paumier

Neuroscientist, PhD

speaker

Kelly Atkins

Monash University

speaker

Laura Duncan

Genetic Counselor, Vanderbilt University Medical

Dr. Lauren Byrne

Postdoctoral Fellow

HDYO Board, Research Co-Chair

Read Bio
Saifullah Khan is an experienced Product leader with over 8 years of experience working in various product roles in tech organizations. A graduate of National University of Computer and Emerging Sciences Pakistan - with a degree in Technology and Business Management; Saif’s areas of interest include product strategy, product-driven growth, and digital transformation.

As a product leader, Saif has led large cross-functional teams in the development of digital products in a variety of industries, from IoT, to quick commerce, to real estate.

As a digital transformation evangelist, Saif has also been involved in national-scale digital transformation projects, as well as building enterprise-grade operations monitoring and management platforms. Saif is currently at Glowfish Labs, where he is building a product consultancy wing at the company, and is involved with an innovative startup disrupting the real estate space in the Middle East.

Prior to joining Glowfish, he was Product Lead at Cheetay, part of the core team that led Cheetay to 10x growth YoY during the pandemic, launched the Grocery vertical, and led the transition of Cheetay's tech and product functions from a 3rd party service provider to an in-house team.

Dr. Leora Fox

Assistant Director of Research and Patient Engagement

HDSA

Read Bio
Suhaib is a product management professional at 7vals, a leading software house in Pakistan. After working at IbexGlobal as a software engineer, he stepped into product management with “Rexel”, a global leader in the professional distribution of electrical products and services. While working at their Paris headquarters, he helped the company relaunch their e-commerce platform with multichannel integration before coming back to Pakistan and joining 7vals. Here, he is currently leading the effort to build capabilities within the platform housing 7vals' three SaaS products.

Suhaib has a BS degree in Computer Science from LUMS and a Master’s degree in Strategy and Management of International Business from ESSEC Business School, France.

Mackenzie Remillard

HDYO Ambassador

Impacted by HD

Read Bio
TBA

Megha Bhaduri

Screenwriter and Director

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Dr. Jane Paulsen

PREVENT-HD

University of Wisconsin

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Prof Sarah Tabrizi

Director of UCL HD Centre

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.
speaker

Peter McColgan, Roche

Clinical Science Leader

Dr. Rebecca Mason

JOIN-HD Study Coordinator

HDYO

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Sadie Van Beest

Ambassador

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Tess Persson

Ambassador

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Trey Gray

Musician

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Yousef Gamal El-Din

Anchor Bloomberg

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.

Zaynab Umakhanova

Economist

Impacted by HD

Read Bio
Sr. Product Manager EMPG Labs (Zameen.com). A decade long experience in building and managing products.
speaker

Zhao Xinrun

HD Advocate

Sponsors

Platinum Sponsors

Gold Sponsors

Silver Sponsors

Frequently Asked Questions

Your login details will be emailed to you ahead of the event. You can use these details to access the online event.
You will be able to speak with HDYO staff and volunteers, as well as a range of young people, families and professionals from around the world who are impacted by HD.
No. You do not need to download or install any software to participate. You only need to have access to the internet.
Yes, you can log in from any device as long as it is connected to the Internet.
This is an online event. You do not have to travel to any specific location. You can participate anywhere that you have Internet access. The event is accessible from desktop, mobile and tablet devices.
Yes. We will have a cart for you! You can add all of the documents and videos available in the different exhibition stands to the online cart and then email them to yourself or share items with colleagues and friends by simply entering their email.
Absolutely. We are counting on you to invite others! Help us spread the word. You can simply share the link to this page, and they can register at their convenience.
Yes you can! That session is there to be time friendly for that region of the world, but anyone and all are able to attend the session.
Yes, both on the event site for 30 days and on to HDYO's Youtube channel shortly afterwards